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lucy | msloobylee Instagram Photo Profile

lucy

@msloobylee

  • Media Post 64
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  • Following 69

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@msloobylee Media

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  • @msloobylee shared an image

    ❀️ Medicine increase has wiped her out. Would mind less if it seemed to be working but if anything she's getting worse. Spasm clusters up to 10 a day lasting from 5 to 15 minutes. My poor boo. 😒 #tuberoussclerosis #infantilespasms #babiesofinstagram #epilepsysucks | lucy | msloobylee Instagram Photo Profile
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    She loves staring up at the leaves.
#nofilter #babyblueeyes #babiesofinstagram πŸ’• | lucy | msloobylee Instagram Photo Profile
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    Love this outfit. Want it for myself 😍 | lucy | msloobylee Instagram Photo Profile
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    Pretty much the only time she has been vaguely happy today. πŸ˜’πŸ’” New meds are rough. #infantilespasms #tuberoussclerosis #sabril #epilepsysucks | lucy | msloobylee Instagram Photo Profile
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    Eeg for infantile spasms. She had a bit of a meltdown while the electrodes were being fitted but a dummy and some tv calmed her enough to get through it. Very clockwork orange though. #tuberoussclerosis #tscwarrior #infantilespasms | lucy | msloobylee Instagram Photo Profile
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    πŸ’•πŸ’•πŸ’• | lucy | msloobylee Instagram Photo Profile
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    Too hot to move. πŸ”₯πŸ‘ΆπŸΌ | lucy | msloobylee Instagram Photo Profile
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    πŸ‘ΆπŸΌβ€οΈπŸŠπŸ»β€β™€οΈ | lucy | msloobylee Instagram Photo Profile
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    Found our feet! | lucy | msloobylee Instagram Photo Profile
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    #ootd number 3. Number 2 didn't last long enough for a photo! 🀒 | lucy | msloobylee Instagram Photo Profile
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    #ootd | lucy | msloobylee Instagram Photo Profile
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    Just a selection from a session of trying and failing to get her to smile for the camera! #doesnotperformoncommand #cansmile #15weeksold #tscwarrior #littlebutfierce | lucy | msloobylee Instagram Photo Profile
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    YSP #lambs | lucy | msloobylee Instagram Photo Profile
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    😍 | lucy | msloobylee Instagram Photo Profile
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    Trying to get a single nice photo of this cute outfit! #littleandfierce #letthembelittle #epilepsywarrior #tastyhands πŸ’–πŸ’–πŸ’– | lucy | msloobylee Instagram Photo Profile
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    Am so lucky to see this face every day. πŸ’–πŸ’•πŸ˜ | lucy | msloobylee Instagram Photo Profile
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    Peaceful. At least one of us is sleeping. πŸ˜β€πŸ’• | lucy | msloobylee Instagram Photo Profile
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     | lucy | msloobylee Instagram Photo Profile
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